RESOURCES
There are so many organisations, support groups, websites and companies out there, it can be daunting. Here is our pick of the best resources from both Australia and Internationally, to guide you through the world of tube feeding, meal replacements, home blending, and nutrition.
Facebook Groups
Closed group facebook page: Feeding Tube Australia - https://www.facebook.com/groups/1598142220454462/
https://www.facebook.com/AussieTubieMates/
https://www.facebook.com/foodfortubies/
https://www.facebook.com/groups/FeedingTubeCaregivers/
https://www.facebook.com/groups/resourcesforspecialneedsaustralia/
Useful Articles
Outcomes and Safety of Blenderized Tube Feedings in Pediatric Patients: A Single Center’s Experience
Efficacy and Tolerance of Blended Diets in Children Receiving
Great article on supporting parents with home blending (Suzanne Evans Morris is the guru of Speech Pathology and feeding work): http://www.new-vis.com/fym/papers/p-feed23.htm
Article written by a dietitian about benefits & risks of home blending: https://www.todaysdietitian.com/newarchives/011315p30.shtml
https://foodandnutrition.org/july-august-2016/risks-benefits-diy-blended-tube-feedings/
Journal article on the re-emergence of blended tube feeds: https://www.liebertpub.com/doi/pdfplus/10.1089/acm.2017.0134
Journal article exploring the positive effects of tube feeding with real food ingredients (TFRF) in children with intestinal failure:
https://onlinelibrary.wiley.com/doi/abs/10.1177/0884533616661011
Research study exploring the change in gagging and retching behaviours in children who continued to gag and retch following Nissen fundoplication:
https://www.ncbi.nlm.nih.gov/pubmed/21527599
Research study looking at the changes in gut/stool bacterial diversity, prevalence of vomiting and requirement for reflux treatments in a group of medically complex children who were transitioned to a blenderised enteral nutrition diet:
https://onlinelibrary.wiley.com/doi/abs/10.1002/jpen.1049
Support to parents/care givers on different options for preparing home made blended diets for tube feeding:
https://onlinelibrary.wiley.com/doi/abs/10.1177/0884533616662993
Use of blenderised tube feeding in adults and children:
Useful Websites & Support Groups
Feeding Tube Awareness Foundation
https://www.feedingtubeawareness.org/
Lively Eaters Feeding Services for support with tube feeding and tube weaning:
Source Kids magazine and online media channel for parents, carers and professionals of children with special needs
https://www.sourcekids.com.au/
Tube Fed Kids Deserve to Eat - connecting parents of children with feeding tube issues
AusEE support group for people affected by eosinophilic disorders
http://www.ausee.org/tubefeeding.htm
Feeding tube awareness website
https://www.feedingtubeaware.com.au/
The Oley Foundation - enriching the lives of those living with tube and intravenous feeding
Books
Fantastic book that shows beautiful photos of children with chromosomal and genetic differences.
https://www.superpowerbabyproject.org/
Special - Antidotes to the Obsessions That Come with Your Child’s Disability
Tube Feeding Accessories
Onesie with access for tube feeding: https://wonsie.com.au/
Backpacks, button pads and belts: https://tubiefun.com/